Programme

The conference will be held on the 7th of February, 2015, from 09:30 until 19:00 with coffee-breaks and dinner. Venue: Moscow, Shabolovka st., 26/3. International College of Economics and Finance (ICEF)

Please note that all rooms are equipped with access ramps, so there is no problem for wheelchair bound people to participate in the conference. We can also help with transfer to the conference and back, in case you have problems with transportation.

 

10:00-10:30 – MULTIDISCIPLINARY APPROACH IN ALS PATIENTS MANAGEMENT

Lev Brylev, MD, PhD, neurologist, head of neurology department in Clinical Hospital #12 (Moscow)

 

10:30-11:00 – THE WAY A SEVERE DISEASE CHANGES FAMILY AND RELATIONSHIP STRUCTURE

Oksana Orlova, psychotherapist (Moscow)

 

11:00-11:30 – COMMUNICATION DEVICES FOR ALS PATIENTS

Alexander Chervyakov, MD, PhD, neurologist, neurophysiologist, research manager in Scientific Research Centre of Neurology  (Moscow)

 

11:45-12:15 – REVIEW OF CURRENT INTERNATIONAL ALS RESEARCH

Maria Zakharova, MD, PhD, neurologist, head research manager in Scientific Research Centre of Neurology  (Moscow)

 

12:15-12:45 – ORGANIZATION OF THE MEAL FOR ALS PATIENTS

Irina Avdyunina, MD, PhD, neurologist, senior research manager in Scientific Research Centre of Neurology  (Moscow)

 

12:45-13:15 – NUTRITIONAL PROBLEMS OF ALS PATIENTS

Kirill Krylov, MD, PhD, anesthesiologist and intensive care specialist in the intensive care unit of Burdenko National Research Institute of Neurosurgery (Moscow)

 

14:00-14:30 – PROPHYLAXIS OF SEVERE STATES AND SECONDARY COMPLICATIONS IN ALS PATIENTS

Elena Bilichenko, MD, Physical therapist (St-Petersburg)

 

14:30-15:15 – BASIC CARE IN AMYOTROPHIC LATERAL SCLEROSIS

Marina Byalik, PhD, president of Improvement of Palliative Care Initiative Foundation (Moscow),  

Anna Hansen, senior nurse (Oslo, Norway)

 

15:15-15:30 – GASTROSTOMY TUBE HOMECARE

Larisa Borisenko, wife of an ALS patient

 

15:45-16:15 – THEORY OF DECISION MAKING

Alexey Belyanin, PhD, associate professor of International College of Economics and Finance, head of Laboratory of Experimental and Behavioral Economy (Moscow)

 

16:15-16:45 – TOUGH DECISIONS IN ALS

Anna Sonkina, MD, palliative care specialist, coordinator of Palliative Care Association (Moscow)

 

16:45-17:15 – ALS RESPIRATORY SUPPORT: PAST, PRESENT AND FUTURE

Vasiliy Shtabnitskiy, MD, PhD, Pulmonologist in ALS support service, research manager in National Research Institute of Pulmonology (Moscow)

 

17:30-19:00 – DISCUSSION PANEL “WHO CAN REPRESENT ALS PATIENTS’ INTERESTS IN RUSSIA”

Participants: patients, physicians, relatives, nurses and paramedics